Clik here to view.
Sometimes I forget
Sometimes I forget that Cowden’s Syndrome is not just Meghan’s – it’s mine. If I am to be precise, it is Meghan’s BECAUSE of me. And I say that not out of guilt, but more as a point of fact. And I...
View ArticleClik here to view.
It’s not a sprint… It’s a marathon
I’m not a runner. At least not in the traditional way my sisters run. I don’t really run unless I am being chased. Tried it for a while but the knees and the back weren’t interested. So the only...
View ArticleClik here to view.
A REAL Love Story
I’m not one for Valentine’s Day. Never was. It didn’t matter to me if I was dating or single, it just never made sense. The “Hallmark Holiday” seemed determined to bleed money out of people who...
View ArticleClik here to view.
You Might Have Cowden’s Syndrome if…
You might have Cowden’s Syndrome (or insert your chronic/rare illness here) if… I spent some time alone last night. That sounded a great deal nicer than it actually was. There was no manicure, no spa,...
View ArticleClik here to view.
Rare Disease Day 2018
I took today off from work. Sadly, it was not to enjoy the almost 60 degree February day. Today was doctor day. And as I traveled two hours for the 17 mile trip into Manhattan this morning, I had...
View ArticleClik here to view.
Triage- A Way of Life
Triage. The word hangs with me like the memories of countless Emergency Room visits. Triage. Take care of the most serious first. It’s the reason we might wait hours for stitches, and barely a moment...
View ArticleClik here to view.
When you reach the end of your rope…
There is no other choice really. We must hang on. We must always hang on. So often this is easier said than done. Last weekend I stayed up all night Saturday digging out from under a pile of...
View ArticleClik here to view.
It’s This Day to Day Living…
And that might be an accurate description of my current assessment of living with Cowden’s Syndrome. It’s so hard to put into words. Those who don’t understand are likely to think I’m insane. When...
View ArticleClik here to view.
The Carousel
Life is very much like a carousel… you must hold on tightly. It will not stop until it is over… I always heard about the body changing every seven years. I never gave it much thought.A quick Google...
View ArticleClik here to view.
Difficult To Work With
I am so tired of fighting. All the time. My Grandfather told me many years ago that I was “difficult to work with.” He said it with love. I don’t remember the exact context. I do remember it was...
View Article